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The BSSA 2018 Research Award 

 

Success for Sjogrens Cambs and Cambridge based Patients Led Research Hub

 

 

Our co-produced funding application with the Cambridge based “Patients Led Research Hub” (based at Addenbrooke’s Hospital to the British Sjögren’s Syndrome Association’s 2018 Research Award has been successful! 

 

This grant will help to create an online patient portal to allow sjogrerns syndrome patients to interact with their own health data, use symptom trackers, and input trial data. We aim to use the portal as a platform for a patient led dietary supplement trial.

 

Great News for all Sjogren’s Syndrome patients.  Read the full details from Carol and Henrietta on our "New Research Project Page"

 

 

 

"Sjögren's Syndrome" -  the most common illness that people have never heard of !                                                

 

We try to bring you up to date information related to Sjögrens Syndrome from UK and World Wide sources, in a plain speaking style,  so both patients and busy healthcare professionals can use it as a basic source of information and reference.  

 

The condition has many complexities and articles on this website highlight a number of both well known and more obsure issues related to both Primary and Secondary Sjögrens Syndrome.

 

Kings College, Cambridge

 

 

Our aim is to promote and develop an improved understanding of the complexity of both Primary and Secondary Sjögrens Syndrome for all patients, carers and medical professionals.

 

 

Our collective target is to improve treatments for this disabling condition and hopefully a cure "one day"

 

Peterborough Guildhall

10,000 website visitors in less than two years   -   We're there!

 

 

Over 10,000 visits have been made to the website of Cambridgeshire Sjogen’s Syndrome Support Group in under two years.

 

This figure has exceeded all expectations when the website was launched to provide information for local patients suffering from the incurable autoimmune disease Sjogren’s Syndrome.  In realty it is now reaching patients, their carers and medical professionals well beyond the boundaries of Cambridgeshire and Peterborough, and even the United Kingdom.

 

Far from being insular and inward looking the group’s website has reached out around the world with it’s messages presented in plain speaking language, up to date news items and reviews of how Brexit will certainly not benefit Sjogren’s Syndrome patients in the UK

 

 

 

Welcome to the Cambridgeshire Support Group of the British Sjögren's Syndrome Association (+ BSSA Membership Link)                      

 

We are part of the British Sjögren's Syndrome Association.  Our first regional group meeting was held in March 2014 with four members present and now has over thirty members.  Group members come from a wide area of East Anglia, including Cambridgeshire, Norfolk, Suffolk, Bedfordshire, Peterborough, Essex and Hertfordshire

 

 

We aim to give support to each other as well as extending knowledge of the condition and exploring ways to manage Sjögren's Syndrome and it's many associated effects.

 

 

If you wish to learn more about the Sjögren's Syndrome support group, based in the Cambridge area and attend our regular meetings and talks/presentations please contact us via the following link -   contact

 

You are welcome to attend any of our regular meetings in Cambridgeshire and Peterborough, please note however all those attending have to be fullly paid up members of the British Sjögren's Syndrome Assiciation

 

To access the BSSA's Website, Forums, Attend BSSA and Regional Support Group Meetings and Access the Dedicated BSSA Patient Helpline  - you will need to be a member of the BSSA.

 

Annual Cost £25.00 UK per member or £30.00 overseas

 

Please click on the below link for further informationm on BSSA membership

 

www.bssa.uk.net

 

Online Link to the BSSA Membership Application Form

 

https://www.bssa.uk.net/members-register.asp

Slideshow of our local region in Cambridgeshire and Surrounding Areas.  Let us know haw many locations you have identified.

 

 

 

Check out our Facebook Page

 

"Cambridge Sjogrens Support Group"

 

click on this link to view:

 

https://www.facebook.com/cambridgesjogrens/?ref=ts&fref=t

 

 

 

 

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© Carol Burns