British Sjogrens Syndrome Association  BSSA

 

 

About the BSSA

The British Sjögren's Syndrome Association (BSSA) was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment.

 

A self-help organisation with more than 2200 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease. We have regional support groups throughout the UK whose members include sufferers and supporters who work together in helping one another cope with the day-to-day challenges of this debilitating and distressing condition. The BSSA also has a helpline, we distribute a variety of literature including an informative quarterly newsletter and we award an annual research grant. There is currently no cure for Sjögren's Syndrome and the cause is still unknown.

 

BSSA aims and objectives are:

  • Raise awareness of Sjögren’s Syndrome
  • Educate people about the condition
  • Support research into its cause and treatment

 

Benefits for joining the BSSA:

 

  • Providing information and support to those affected by the condition
  • Distribute a variety of literature including an informative quarterly magazine
  • Operating a national members’ helpline facility
  • Hosting regular regional meetings throughout the UK
  • Link members through our ‘make a friend’ scheme
  • Annual medical meeting with talks from consultants and experts in Sjögren’s Syndrome
  • Online members forum
  • Full access to our informative website

 

UK membership: £25.

 

Overseas membership: £30.

 

Join online now or download our application form

Even if you are not a member of the BSSA, you are welcome to make an initial call to our members’ helpline. If you would like to continue to use it further, we do ask that you become a member, as without this vital financial contribution, this helpline would not be able to operate. 

 

 

Office Hours: 9am - 2pm, Mon to Thurs (answer phone facility out of hours).

 

Members Helpline (go to the "Useful Contacts" page on this website)

If you need to chat to a friendly, listening ear about Sjögren’s Syndrome affecting your life, please call our members’ helpline. The helpline is available between 9.30am – 4.00pm, Monday to Wednesday and 9.30am - 8pm Thursday and Friday. Remember, if your call is not answered immediately, please be patient as a voicemail facility is available. Please leave your name and telephone number and your call will be returned.

 

Please note, the helpline is for advice only, for all other enquiries please call the BSSA office on 0121 478 0222.